Kerina Jones

ORCID iD
https://orcid.org/0000-0001-8164-3718
  • Country
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United Kingdom

Sources:
Kerina Jones (2017-05-30)

  • Keywords
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Innovative Governance, privacy and utility, ELSI of data use/non-use

Sources:
Kerina Jones (2017-05-30)

  • Websites
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SAIL Databank

Sources:
Kerina Jones (2017-05-30)

ADRC-Wales

Sources:
Kerina Jones (2017-05-30)

Farr Institute of Health Informatics Research

Sources:
Kerina Jones (2017-05-30)

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Scopus Author ID: 26221796600

Sources:
Scopus - Elsevier (2018-06-08)

Biography

Current role: Academic lead for IG across the various Swansea University-based data intensive/linkage initiatives to ensure data protection and maximise data utility. Leading the active Innovative Governance working group of the Farr Institute: working collaboratively to advise and influence the developing data governance landscape to promote the safe reuse of data. Leading a research programme in IG, including work to inform cross-centre research and how emerging data types, such as genetic data, can be used in conjunction with structured micro-data. Strong interest in the development of innovative disease registers that incorporate patient reported data for combination with health data, notably, the UK MS Register. Active in MS research. Regular advisor and invited speaker on data governance. Academic advisor for Public Involvement and Engagement. Established a Consumer Panel for data linkage research. Participation in public debates and engagement events on the use of anonymised data for research.
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