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Scopus Author ID: 56529163000

Keywords

health services, research methodologies, interdisciplinary, discourse, health humanities

Countries

Ireland

Activities

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Works (23)

Challenges and solutions to complex data governance issues in cross-national, cross-sectoral, multidisciplinary real world health research: a descriptive overview

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
2025-03 | Journal article
DOI: 10.1080/21678421.2024.2428927
Contributors: Miriam Galvin; Mark Heverin; Éanna Mac Domhnaill; Robert Mcfarlane; Dara Meldrum; Deirdre Murray; Anthony Bolger; Julie Connelly; Kieran Flynn; Evelyn Fox et al.
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Crossref

A Model-Based Economic Evaluation of Hypothetical Treatments for Amyotrophic Lateral Sclerosis in the UK: Implications for Pricing of New and Emerging Health Technologies

PharmacoEconomics
2024-09 | Journal article
DOI: 10.1007/s40273-024-01395-7
Contributors: Paul Tappenden; Orla Hardiman; Sun-Hong Kwon; Mon Mon-Yee; Miriam Galvin; Christopher McDermott
Source: check_circle
Crossref

Care, burden and self-described positive aspects of caring in amyotrophic lateral sclerosis: an exploratory, longitudinal, mixed-methods study

BMJ Open
2023-01 | Journal article
DOI: 10.1136/bmjopen-2022-064254
Contributors: Éilís Conroy; Polly Kennedy; Mark Heverin; Orla Hardiman; Miriam Galvin
Source: check_circle
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Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

International Journal of Geriatric Psychiatry
2022-06 | Journal article
DOI: 10.1002/gps.5734
Contributors: Emilia Grycuk; Yaohua Chen; Arianna Almirall‐Sanchez; Dawn Higgins; Miriam Galvin; Joseph Kane; Irina Kinchin; Brian Lawlor; Carol Rogan; Gregor Russell et al.
Source: check_circle
Crossref

A Clinical Decision Support System for the Prediction of Quality of Life in ALS

Journal of Personalized Medicine
2022-03-10 | Journal article
DOI: 10.3390/jpm12030435
Contributors: Anna Markella Antoniadi; Miriam Galvin; Mark Heverin; Lan Wei; Orla Hardiman; Catherine Mooney
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Crossref

Understanding the needs of people with ALS: a national survey of patients and caregivers

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
2020 | Journal article
DOI: 10.1080/21678421.2020.1760889
EID:

2-s2.0-85085060901

Part of ISBN:

21679223 21678421
Contributors: Brizzi, K.T.; Bridges, J.F.P.; Yersak, J.; Balas, C.; Thakur, N.; Galvin, M.; Hardiman, O.; Heatwole, C.; Ravits, J.; Simmons, Z. et al.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Individual quality of life in spousal ALS patient-caregiver dyads

Health and Quality of Life Outcomes
2020-12 | Journal article
DOI: 10.1186/s12955-020-01551-5
Contributors: Miriam Galvin; Tommy Gavin; Iain Mays; Mark Heverin; Orla Hardiman
Source: check_circle
Crossref

To live and age as who we really are: Perspectives from older LGBT+ people in Ireland

HRB Open Research
2020-05-21 | Journal article
DOI: 10.12688/hrbopenres.12990.2
Contributors: Lorna Roe; Miriam Galvin; Laura Booi; Lenisa Brandao; Jorge Leon Salas; Eimear McGlinchey; Dana Walrath
Source: check_circle
Crossref

Prediction of caregiver burden in amyotrophic lateral sclerosis: a machine learning approach using random forests applied to a cohort study

BMJ Open
2020-02 | Journal article
DOI: 10.1136/bmjopen-2019-033109
Contributors: Anna Markella Antoniadi; Miriam Galvin; Mark Heverin; Orla Hardiman; Catherine Mooney
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Crossref
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To live and age as who we really are

HRB Open Research
2020-02-12 | Journal article
DOI: 10.12688/hrbopenres.12990.1
Contributors: Lorna Roe; Miriam Galvin; Laura Booi; Lenisa Brandao; Jorge Leon Salas; Eimear McGlinchey; Dana Walrath
Source: check_circle
Crossref

Physicians’ attitudes toward end-of-life decisions in amyotrophic lateral sclerosis

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
2019 | Journal article
DOI: 10.1080/21678421.2018.1536154
EID:

2-s2.0-85065765889

Part of ISBN:

21679223 21678421
Contributors: Thurn, T.; Borasio, G.D.; Chiò, A.; Galvin, M.; McDermott, C.J.; Mora, G.; Sermeus, W.; Winkler, A.S.; Anneser, J.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol

BMJ Open
2019-09 | Journal article
DOI: 10.1136/bmjopen-2019-030684
Contributors: Tom Burke; Jennifer Wilson O'Raghallaigh; Sinead Maguire; Miriam Galvin; Mark Heverin; Orla Hardiman; Niall Pender
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Longitudinal predictors of caregiver burden in amyotrophic lateral sclerosis: a population-based cohort of patient–caregiver dyads

Journal of Neurology
2018 | Journal article
DOI: 10.1007/s00415-018-8770-6
EID:

2-s2.0-85044818736

Part of ISBN:

14321459 03405354
Contributors: Burke, T.; Hardiman, O.; Pinto-Grau, M.; Lonergan, K.; Heverin, M.; Tobin, K.; Staines, A.; Galvin, M.; Pender, N.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Needs of informal caregivers across the caregiving course in amyotrophic lateral sclerosis: a qualitative analysis

BMJ Open
2018-01 | Journal article
DOI: 10.1136/bmjopen-2017-018721
Contributors: Miriam Galvin; Sile Carney; Bernie Corr; Iain Mays; Niall Pender; Orla Hardiman
Source: check_circle
Crossref
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Caregivers of patients with amyotrophic lateral sclerosis: investigating quality of life, caregiver burden, service engagement, and patient survival

Journal of Neurology
2017 | Journal article
DOI: 10.1007/s00415-017-8448-5
EID:

2-s2.0-85014656569

Part of ISBN:

14321459 03405354
Contributors: Burke, T.; Galvin, M.; Pinto-Grau, M.; Lonergan, K.; Madden, C.; Mays, I.; Carney, S.; Hardiman, O.; Pender, N.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

From first symptoms to diagnosis of amyotrophic lateral sclerosis: Perspectives of an Irish informal caregiver cohort - A thematic analysis

BMJ Open
2017 | Journal article
DOI: 10.1136/bmjopen-2016-014985
EID:

2-s2.0-85015959979

Part of ISBN:

20446055
Contributors: Galvin, M.; Gaffney, R.; Corr, B.; Mays, I.; Hardiman, O.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

The path to specialist multidisciplinary care in amyotrophic lateral sclerosis: A population- based study of consultations, interventions and costs

PLOS ONE
2017-06-22 | Journal article
DOI: 10.1371/journal.pone.0179796
Contributors: Miriam Galvin; Alfonso Fasano; Padhraig Ryan; Sinead Maguire; Mark Heverin; Caoifa Madden; Alice Vajda; Charles Normand; Orla Hardiman
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Crossref
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Caregiving in ALS - A mixed methods approach to the study of Burden

BMC Palliative Care
2016 | Journal article
DOI: 10.1186/s12904-016-0153-0
EID:

2-s2.0-84984911609

Part of ISBN:

1472684X
Contributors: Galvin, M.; Corr, B.; Madden, C.; Mays, I.; McQuillan, R.; Timonen, V.; Staines, A.; Hardiman, O.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Survival analysis of geospatial factors in the Irish ALS cohort

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
2016 | Journal article
DOI: 10.1080/21678421.2016.1179326
EID:

2-s2.0-84965028546

Part of ISBN:

21679223 21678421
Contributors: Rooney, J.; Heverin, M.; Vajda, A.; Burke, T.; Galvin, M.; Tobin, K.; Elamin, M.; Staines, A.; Hardiman, O.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors

Journal of Neurology
2015 | Journal article
DOI: 10.1007/s00415-015-7746-z
EID:

2-s2.0-84931010807

Part of ISBN:

14321459 03405354
Contributors: Burke, T.; Elamin, M.; Galvin, M.; Hardiman, O.; Pender, N.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

End-of-life management in patients with amyotrophic lateral sclerosis

The Lancet Neurology
2015 | Journal article
DOI: 10.1016/S1474-4422(14)70221-2
EID:

2-s2.0-84926408758

Part of ISBN:

14744465 14744422
Contributors: Connolly, S.; Galvin, M.; Hardiman, O.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Erratum: Caregiver burden in amyotrophic lateral sclerosis: a cross-sectional investigation of predictors. [J Neurol, (2015) 262, (1526-1532), DOI 10.1007/s00415-015-7746-z]

Journal of Neurology
2015 | Journal article
DOI: 10.1007/s00415-015-7941-y
EID:

2-s2.0-84947868962

Part of ISBN:

14321459 03405354
Contributors: Burke, T.; Elamin, M.; Galvin, M.; Gallagher, L.; Hardiman, O.; Pender, N.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Patient journey to a specialist amyotrophic lateral sclerosis multidisciplinary clinic: An exploratory study

BMC Health Services Research
2015 | Journal article
DOI: 10.1186/s12913-015-1229-x
EID:

2-s2.0-84951023175

Part of ISBN:

14726963
Contributors: Galvin, M.; Madden, C.; Maguire, S.; Heverin, M.; Vajda, A.; Staines, A.; Hardiman, O.
Source: Self-asserted source
Miriam Galvin via Scopus - Elsevier

Peer review (1 review for 1 publication/grant)

Review activity for Quality of life research. (1)
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