Personal information

Emails & domains

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Websites & social links

Research Gate
Open Science Foundation
Google Scholar

Other IDs

Scopus Author ID: 35095344100

Keywords

FAIR principles data sharing

Countries

Colombia, Nicaragua, Germany, United States, Yemen

Activities

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Education and qualifications (1)

University of North Carolina Gillings School of Global Public Health: NC, NC, US

2008-08-20 to 2010-05-05 | MPH (Maternal and Child Health)
Education
Source: Self-asserted source
Lauren Maxwell

Works (50 of 68)

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Page 1 of 2

How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A protocol for a scoping review

Open Research Europe
2025-01-14 | Journal article
DOI: 10.12688/openreseurope.16063.2
Contributors: Lauren Maxwell; Priya Shreedhar; Ankur Krishnan
Source: check_circle
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“Men’s is the only and final word.” A qualitative study of community midwives’ insights on violence against women and girls in Yemen, including the forms, causes, and responses of survivors and their families

2025-01-07 | Preprint
DOI: 10.1101/2025.01.02.25319891
Contributors: Marwah Al Zumair; Hussein Zaid; Luz Marina Leegstra; Raisa Ferrer Pizarro; Priya Shreedhar; Monia Al Zumair; Lamya Bawahda; Albrecht Jann; Lauren Maxwell
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What effects do mental health policies have on adolescent suicidal ideation or behavior, suicide, and bullying? A systematic review

Social Sciences & Humanities Open
2024 | Journal article
DOI: 10.1016/j.ssaho.2024.101057
Contributors: Luz Marina Leegstra; Dismas Damian; Lauren Maxwell
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Statements on Open Science for Sustainable Development Goals

Data Science Journal
2024-10-10 | Journal article
DOI: 10.5334/dsj-2024-049
Contributors: Boon-How Chew; Lauren Maxwell; Felix Emeka Anyiam; Aziza Menouni; Tonni Agustiono Kurniawan; Kangbéni Dimobe; Til Prasad Pangali Sharma; Gomaa A. M. Ali; Ram Devi Tachamo Shah; Rabia Saleem et al.
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Violence against women and children in Yemen: A mixed-methods systematic review

2024-08-02 | Preprint
DOI: 10.1101/2024.08.01.24310001
Contributors: Samana Shreedhar; Sayali Arvind Chavan; Marwah Al-Zumair; Mirna Naccache; Priya Shreedhar; Lauren Maxwell
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International Symposium on Open Science Clouds presentation on federated reuse of sensitive health data

2024-03-18 | Lecture | Author
DOI: 10.6084/m9.figshare.25428922
SOURCE-WORK-ID:

25428922
Contributors: Lauren Maxwell
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The international ecosystem of country-level health data commons and spaces. How can we advance FAIR convergence in the (supra) national health data space?

2024-03-18 | Conference poster | Author
DOI: 10.6084/m9.figshare.25428991
SOURCE-WORK-ID:

25428991
Contributors: Lauren Maxwell
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How to plan and manage an individual participant data meta‐analysis. An illustrative toolkit

Research Synthesis Methods
2024-01 | Journal article
DOI: 10.1002/jrsm.1670
Contributors: Lauren Maxwell; Priya Shreedhar; Mabel Carabali; Brooke Levis
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FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries

The Lancet Digital Health
2023-10 | Journal article
DOI: 10.1016/S2589-7500(23)00129-2
Contributors: Lauren Maxwell; Priya Shreedhar; Delphine Dauga; Peter McQuilton; Robert F Terry; Alisa Denisiuk; Fruzsina Molnar-Gabor; Abha Saxena; Susanna-Assunta Sansone
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How do we measure the costs, benefits, and harms of sharing data from biomedical studies? A scoping review

Open Research Europe
2023-09-18 | Journal article
DOI: 10.12688/openreseurope.16063.1
Contributors: Lauren Maxwell; Priya Shreedhar; Ankur Krishnan
Source: check_circle
Crossref

"<i>How about me giving blood for the COVID vaccine and not being able to get vaccinated?</i>" A cognitive interview study on understanding of and agreement with broad consent for future use of data and samples in Colombia and Nicaragua.

2023-09-13 | Conference poster | Author
DOI: 10.6084/m9.figshare.24131643
SOURCE-WORK-ID:

24131643
Contributors: Lauren Maxwell; JACKELINE BRAVO CHAMORRO; Luz Marina Leegstra; Harold Suazo-Laguna; María Consuelo Miranda Montoya
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Overlapping research efforts in a global pandemic: a rapid systematic review of COVID-19-related individual participant data meta-analyses

BMC Health Services Research
2023-07-06 | Journal article
DOI: 10.1186/s12913-023-09726-8
Contributors: Lauren Maxwell; Priya Shreedhar; Brooke Levis; Sayali Arvind Chavan; Shaila Akter; Mabel Carabali
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Mapping the international ecosystem of national health data spaces. A scoping review protocol

Open Research Europe
2023-06-06 | Journal article
DOI: 10.12688/openreseurope.15982.1
Contributors: Lauren Maxwell
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"How about me giving blood for the COVID vaccine and not being able to get vaccinated?" A cognitive interview study on understanding of and agreement with broad consent for future use of data and samples in Colombia and Nicaragua

PLOS Global Public Health
2023-05-17 | Journal article
DOI: 10.1371/journal.pgph.0001253
Contributors: Lauren Maxwell; Giridhara R Babu; Jackeline Bravo Chamorro; Luz Marina Leegstra; Harold Suazo Laguna; María Consuelo Miranda Montoya
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Adjusting for misclassification of an exposure in an individual participant data meta‐analysis

Research Synthesis Methods
2023-03 | Journal article
DOI: 10.1002/jrsm.1606
Contributors: Valentijn M. T. de Jong; Harlan Campbell; Lauren Maxwell; Thomas Jaenisch; Paul Gustafson; Thomas P. A. Debray
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COVID-19 individual participant data meta-analyses. Can there be too many? Results from a rapid systematic review.

2023-01-03 | Preprint
DOI: 10.21203/rs.3.rs-2192562/v1
Contributors: Lauren Maxwell; Priya Shreedhar; Brooke Levis; Sayali Arvind Chavan; Shaila Akter; Mabel Carabali
Source: check_circle
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Heterogeneity of Zika virus exposure and outcome ascertainment across cohorts of pregnant women, their infants and their children: a metadata survey

BMJ Open
2022-11 | Journal article
DOI: 10.1136/bmjopen-2022-064362
Contributors: Mabel Carabali; Lauren Maxwell; Brooke Levis; Priya Shreedhar
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“How about me giving blood for the COVID vaccine and not being able to get vaccinated?” A cognitive interview study on understanding of and agreement with broad consent for future use with cohort participants and guardians in Colombia and Nicaragua

2022-10-17 | Preprint
DOI: 10.1101/2022.10.14.22281094
Contributors: Lauren Maxwell; Jackeline Bravo Chamorro; Luz Marina Leegstra; Harold Suazo Laguna; María Consuelo Miranda Montoya
Source: check_circle
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COVID-19 individual participant data meta-analyses. Can there be too many? Results from a rapid systematic review

2022-09-01 | Preprint
DOI: 10.1101/2022.09.01.22279485
Contributors: Lauren Maxwell; Priya Shreedhar; Brooke Levis; Sayali Arvind Chavan; Shaila Akter; Mabel Carabali
Source: check_circle
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A blank check or a global public good? A qualitative study of how ethics review committee members in Colombia weigh the risks and benefits of broad consent for data and sample sharing during a pandemic

PLOS Global Public Health
2022-06-06 | Journal article
DOI: 10.1371/journal.pgph.0000364
Contributors: María Consuelo Miranda Montoya; M. Dylan Bould; Jackeline Bravo Chamorro; Luz Marina Leegstra; Deyanira Duque Ortiz; Lauren Maxwell
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Systematic Review Reveals Lack of Causal Methodology Applied to Pooled Longitudinal Observational Infectious Disease Studies

Journal of Clinical Epidemiology
2022-05 | Journal article
DOI: 10.1016/j.jclinepi.2022.01.008
Contributors: Heather Hufstedler; Sabahat Rahman; Alexander M. Danzer; Hannah Goymann; Valentijn M.T. de Jong; Harlan Campbell; Paul Gustafson; Thomas P.A. Debray; Thomas Jaenisch; Lauren Maxwell et al.
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FAIR Data for COVID-19 European Commission Fall 2021 Workshop Series Premeeting Survey Results Dataset

2022-03-17 | Dataset | Author
DOI: 10.6084/m9.figshare.19374848
SOURCE-WORK-ID:

19374848
Contributors: Lauren Maxwell; Priya Shreedhar
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Appendix Table S2. FAIR data for a coordinated COVID-19 response meeting-related resources for FAIR implementation

2022-03-13 | Journal article | Author
DOI: 10.6084/m9.figshare.19351661
SOURCE-WORK-ID:

19351661
Contributors: Lauren Maxwell
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Curated lists of tools and trainings related to the FAIR principles for data resources

2022-03-13 | Journal article | Author
DOI: 10.6084/m9.figshare.19351655
SOURCE-WORK-ID:

19351655
Contributors: Lauren Maxwell
Source: check_circle
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FAIR data for a coordinated COVID-19 response pre-meeting survey - European Union-funded COVID-19 Consortia and projects

2022-03-13 | Journal article | Author
DOI: 10.6084/m9.figshare.19351643
SOURCE-WORK-ID:

19351643
Contributors: Lauren Maxwell
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FAIR data for a coordinated COVID-19 response pre-meeting survey - European Union-funded platforms and registries for sharing human subjects' health-related data

2022-03-13 | Journal article | Author
DOI: 10.6084/m9.figshare.19351646
SOURCE-WORK-ID:

19351646
Contributors: Lauren Maxwell
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FAIR data for a coordinated COVID-19 response pre-meeting survey - Stakeholders

2022-03-13 | Journal article | Author
DOI: 10.6084/m9.figshare.19351649
SOURCE-WORK-ID:

19351649
Contributors: Lauren Maxwell
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FAIR data for a coordinated COVID-19 response Fall 2021 European Commission Meeting Agendas

2022-03-12 | Journal article | Author
DOI: 10.6084/m9.figshare.19350188
SOURCE-WORK-ID:

19350188
Contributors: Lauren Maxwell
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FAIR Data for COVID-19 Response_Workshop II_HDR UK, what has worked, what hasn't for cross infrastructure interoperability, community engagement, and governance-related concerns.pdf

2021-12-24 | Lecture
DOI: 10.6084/m9.figshare.17500964
SOURCE-WORK-ID:

17500964
Contributors: Susheel Varma
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FAIR Data for COVID-19 Response_Workshop I_Overview of EU investments in COVID-19 research projects.pdf

2021-12-15 | Lecture
DOI: 10.6084/m9.figshare.17143643
SOURCE-WORK-ID:

17143643
Contributors: Evelyn Depoortere
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FAIR Data for COVID-19 Response_Workshop II_COVID-19 Data Portal Spain.pdf

2021-12-15 | Lecture
DOI: 10.6084/m9.figshare.17206349
SOURCE-WORK-ID:

17206349
Contributors: alfonso valencia
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FAIR Data for COVID-19 Response_Workshop II_Towards a European Health Data Space

2021-12-15 | Lecture
DOI: 10.6084/m9.figshare.17135183
SOURCE-WORK-ID:

17135183
Contributors: Licínio Kustra Mano
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FAIR Data for COVID-19 Response_Workshop I_Interoperable electronic medical record (EMR) participant-level data and metadata.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17143760
SOURCE-WORK-ID:

17143760
Contributors: Xavier Kurz
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FAIR Data for COVID-19 Response_Workshop I_Interoperable metadata and participant-level data from randomized controlled trials.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17143742
SOURCE-WORK-ID:

17143742
Contributors: Steve Canham
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FAIR Data for COVID-19 Response_Workshop I_Observational Medical Outcomes Partnership Common Data Model & other approaches for interoperable participant-level clinical data via the IMI2_EHDEN project

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144024
SOURCE-WORK-ID:

17144024
Contributors: Nigel Hughes
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FAIR Data for COVID-19 Response_Workshop I_Opportunities & challenges for linking data types at the participant-level.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144042
SOURCE-WORK-ID:

17144042
Contributors: Katja Kivinen
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FAIR Data for COVID-19 Response_Workshop I_Phenopackets and GA4GH standards for sharing genetic and phenotypic data.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144075
SOURCE-WORK-ID:

17144075
Contributors: J Dylan Spalding
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FAIR Data for COVID-19 Response_Workshop I_Results of pre-meeting survey

2021-12-14 | Lecture | Author
SOURCE-WORK-ID:

17143688
Contributors: Lauren Maxwell
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FAIR Data for COVID-19 Response_Workshop I_The FAIR Principles and FAIRness brief overview of relevant projects and activities.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17143709
SOURCE-WORK-ID:

17143709
Contributors: Susanna-Assunta Sansone
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FAIR Data for COVID-19 Response_Workshop II_Code of Conduct for Observational Health Research.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144126
SOURCE-WORK-ID:

17144126
Contributors: Michaela Th. Mayrhofer
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FAIR Data for COVID-19 Response_Workshop II_Emerging good practice for interoperable governance related to sharing clinical or epidemiological data.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144141
SOURCE-WORK-ID:

17144141
Contributors: RF Terry
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FAIR Data for COVID-19 Response_Workshop II_Emerging practices and outstanding issues in the context of OMICs data sharing.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144135
SOURCE-WORK-ID:

17144135
Contributors: Yann Joly
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FAIR Data for COVID-19 Response_Workshop II_European COVID-19 Data Platform.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144087
SOURCE-WORK-ID:

17144087
Contributors: Guy Cochrane
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FAIR Data for COVID-19 Response_Workshop II_Reuse of research and clinical data - an issue of trust.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144150
SOURCE-WORK-ID:

17144150
Contributors: Abha Saxena
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FAIR Data for COVID-19 Response_Workshop II_Technical and semantic interoperability of metadata & participant-level data stored in related data sharing infrastructures.pdf

2021-12-14 | Lecture
SOURCE-WORK-ID:

17144105
Contributors: Kees van Bochove
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FAIR Data for COVID-19 Response_Workshop III_A metadata repository for clinical research.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144264
SOURCE-WORK-ID:

17144264
Contributors: Steve Canham
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FAIR Data for COVID-19 Response_Workshop III_Building a FAIR Implementation Profile Begin with Metadata.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144279
SOURCE-WORK-ID:

17144279
Contributors: Erik Schultes
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FAIR Data for COVID-19 Response_Workshop III_FAIRsharing Interoperability Standards and Profiles.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144270
SOURCE-WORK-ID:

17144270
Contributors: Susanna-Assunta Sansone
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FAIR Data for COVID-19 Response_Workshop III_Integrating clinical and genetic data at patient level v6.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17158256
SOURCE-WORK-ID:

17158256
Contributors: Esther Kissling
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FAIR Data for COVID-19 Response_Workshop III_Interconnected data from vulnerable populations.pdf

2021-12-14 | Lecture
DOI: 10.6084/m9.figshare.17144204
SOURCE-WORK-ID:

17144204
Contributors: Maddalena Giannella
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