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Works (18)

“I Didn't Have to Worry about It”: Patient and Family Experiences with Health System Involvement in Notifying Relatives of Genetic Test Results

Public Health Genomics
2024-09-30 | Journal article
DOI: 10.1159/000541532
Contributors: Paula Rae Blasi; Jamilyn M. Zepp; Aaron Scrol; John Ewing; Melissa L. Anderson; James D. Ralston; Stephanie M. Fullerton; Kathleen Leppig; Nora B. Henrikson
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Genetic Testing Uptake among Ovarian Cancer Survivors in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study

Cancers
2024-07-17 | Journal article
DOI: 10.3390/cancers16142563
Contributors: Larissa White; Jennifer Sawyer; Jamilyn Zepp; Yolanda Prado; Ana Reyes; Mahesh Maiyani; Elizabeth Shuster; Rachel Zucker; Nora Henrikson; Alan Rope et al.
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Feasibility of using an app-based coaching intervention to improve provider communication about HPV vaccination

Translational Behavioral Medicine
2023-08-11 | Journal article
DOI: 10.1093/tbm/ibad002
Contributors: Brigid K Grabert; Annie-Laurie McRee; Nora B Henrikson; Jennifer Heisler-MacKinnon; Paula R Blasi; Consuelo M Norris; Matthew B Nguyen; John Dunn; Mary Catharine McKeithen; Melissa B Gilkey
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The Cancer Financial Experience (CAFÉ) study: randomized controlled trial of a financial navigation intervention to address cancer-related financial hardship

Trials
2022-12 | Journal article
DOI: 10.1186/s13063-022-06344-3
Contributors: Nora B. Henrikson; Melissa L. Anderson; John Dickerson; John J. Ewing; Robin Garcia; Erin Keast; Deborah A. King; Cara Lewis; Blake Locher; Carmit McMullen et al.
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Conceptions of Legacy Among People Making Treatment Choices for Serious Illness: Protocol for a Scoping Review

JMIR Research Protocols
2022-12-09 | Journal article
DOI: 10.2196/40791
Contributors: Marlaine Figueroa Gray; Matthew P Banegas; Nora B Henrikson
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Feasibility, acceptability, and limited efficacy of health system-led familial risk notification: protocol for a mixed-methods evaluation

Pilot and Feasibility Studies
2022-08-09 | Journal article
DOI: 10.1186/s40814-022-01142-9
Contributors: Paula R. Blasi; Aaron Scrol; Melissa L. Anderson; Marlaine Figueroa Gray; Brooks Tiffany; Stephanie M. Fullerton; James D. Ralston; Kathleen A. Leppig; Nora B. Henrikson
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Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol

Journal of Personalized Medicine
2021-11 | Journal article | Author
DOI: 10.3390/jpm11111194
Contributors: Tia L. Kauffman; Yolanda K. Prado; Ana A. Reyes; Jamilyn M. Zepp; Jennifer Sawyer; Larissa Lee White; Jessica Martucci; Suzanne Bianca Salas; Sarah Vertrees; Alan Rope et al.
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Multidisciplinary Digital Publishing Institute

Feasibility and Assessment of a Cascade Traceback Screening Program (FACTS): Protocol for a Multisite Study to Implement and Assess an Ovarian Cancer Traceback Cascade Testing Program

Journal of Personalized Medicine
2021-06-11 | Journal article
DOI: 10.3390/jpm11060543
Contributors: Anna DiNucci; Nora B. Henrikson; M. Cabell Jonas; Sundeep Basra; Paula Blasi; Jennifer Brown; Edward D. Esplin; Dina Hassen; Jing Hao; Yirui Hu et al.
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Patient and Family Preferences on Health System-Led Direct Contact for Cascade Screening

Journal of Personalized Medicine
2021-06-10 | Journal article
DOI: 10.3390/jpm11060538
Contributors: Nora B. Henrikson; Paula Blasi; Marlaine Figueroa Gray; Brooks T. Tiffany; Aaron Scrol; James D. Ralston; Stephanie M. Fullerton; Catherine Y. Lim; John Ewing; Kathleen A. Leppig
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A Theoretical Model of Financial Burden After Cancer Diagnosis

Future Oncology
2020-12 | Journal article
DOI: 10.2217/fon-2020-0547
Contributors: Salene MW Jones; Nora B Henrikson; Laura Panattoni; Karen L Syrjala; Veena Shankaran
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Experiences of social scientists in health research settings: SBM Leadership Institute

Translational Behavioral Medicine
2020-10-08 | Journal article
DOI: 10.1093/tbm/ibaa065
Contributors: Nora B Henrikson
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What guidance does HIPAA offer to providers considering familial risk notification and cascade genetic testing?

Journal of Law and the Biosciences
2020-07-25 | Journal article
DOI: 10.1093/jlb/lsaa071
Contributors: Nora B Henrikson; Jennifer K Wagner; Heather Hampel; Christopher DeVore; Nirupama Shridhar; Janet L Williams; Katherine E Donohue; Iftikhar Kullo; Anya E R Prince
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Taking Action to Address Medical Overuse: Common Challenges and Facilitators

The American Journal of Medicine
2020-05 | Journal article
DOI: 10.1016/j.amjmed.2020.01.001
Contributors: Michael L. Parchman; Lorella Palazzo; Brian T. Austin; Paula Blasi; Nora B. Henrikson; Gabrielle Gundersen; Emmy Ganos
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Returning Results in the Genomic Era: Initial Experiences of the eMERGE Network

Journal of Personalized Medicine
2020-04 | Journal article | Author
DOI: 10.3390/jpm10020030
Contributors: Georgia L. Wiesner; Alanna Kulchak Rahm; Paul Appelbaum; Sharon Aufox; Harris T. Bland; Carrie L. Blout; Kurt D. Christensen; Wendy K. Chung; Ellen Wright Clayton; Robert C. Green et al.
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Multidisciplinary Digital Publishing Institute

“It would be so much easier”: health system-led genetic risk notification—feasibility and acceptability of cascade screening in an integrated system

Journal of Community Genetics
2019-10-06 | Journal article
DOI: 10.1007/s12687-019-00412-z
Contributors: Nora B. Henrikson; Paula R. Blasi; Stephanie M. Fullerton; Jane Grafton; Kathleen A. Leppig; Gail P. Jarvik; Eric B. Larson
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Crossref

“You Really Do Have to Know the Local Context”: IRB Administrators and Researchers on the Implications of the NIH Single IRB Mandate for Multisite Genomic Studies

Journal of Empirical Research on Human Research Ethics
2019-07 | Journal article
DOI: 10.1177/1556264619850440
Contributors: Nora B. Henrikson; Paula R. Blasi; Jeremy J. Corsmo; Emily Sheffer Serdoz; Aaron Scrol; Sarah M. Greene; Tanya L. Matthews; James D. Ralston
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Outreach and Reminders to Improve Human Papillomavirus Vaccination in an Integrated Primary Care System

Clinical Pediatrics
2018-11 | Journal article
DOI: 10.1177/0009922818787868
Contributors: Nora B. Henrikson; Weiwei Zhu; Lauren Baba; Matthew Nguyen; Heidi Berthoud; Gabrielle Gundersen; Annika M. Hofstetter
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Family history and the natural history of colorectal cancer: systematic review

Genetics in Medicine
2015-09-02 | Journal article
DOI: 10.1038/gim.2014.188
Contributors: Nora B. Henrikson; Elizabeth M. Webber; Katrina A. Goddard; Aaron Scrol; Margaret Piper; Marc S. Williams; Doris T. Zallen; Ned Calonge; Theodore G. Ganiats; A. Cecile J.W. Janssens et al.
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Peer review (6 reviews for 5 publications/grants)

Review activity for European journal of human genetics (1)
Review activity for Human Genetics and Genomics advances. (1)
Review activity for Journal of community genetics. (1)
Review activity for Journal of the National Cancer Institute : (1)
Review activity for PloS one. (2)
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