Personal information

epidemiology, rare diseases, health services research
Canada

Activities

Education and qualifications (3)

Université d’Ottawa: Ottawa, ON, CA

2014-01 to 2021-04 | PhD (Epidemiology and Public Health)
Education
Source: Self-asserted source
Kylie Tingley

University of Ottawa: Ottawa, ON, CA

2012-09 to 2013-12 | MSc (fast-track PhD) (Epidemiology and Public Health)
Education
Source: Self-asserted source
Kylie Tingley

University of Prince Edward Island: Charlottetown, PE, CA

2008-09 to 2012-04 | BSc (Hons) Biology
Education
Source: Self-asserted source
Kylie Tingley

Works (8)

Stakeholder perspectives on clinical research related to therapies for rare diseases: therapeutic misconception and the value of research

Orphanet Journal of Rare Diseases
2021-12 | Journal article
Contributors: Kylie Tingley; Doug Coyle; Ian D. Graham; Pranesh Chakraborty; Kumanan Wilson; Beth K. Potter
Source: check_circle
Crossref

Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases

Orphanet Journal of Rare Diseases
2018 | Journal article
EID:

2-s2.0-85049200594

Contributors: Tingley, K.; Coyle, D.; Graham, I.D.; Sikora, L.; Chakraborty, P.; Wilson, K.; Mitchell, J.J.; Stockler-Ipsiroglu, S.; Potter, B.K.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Establishing core outcome sets for phenylketonuria (PKU) and medium-chain Acyl-CoA dehydrogenase (MCAD) deficiency in children: Study protocol for systematic reviews and Delphi surveys

Trials
2017 | Journal article
EID:

2-s2.0-85042329117

Contributors: Potter, B.K.; Hutton, B.; Clifford, T.J.; Pallone, N.; Smith, M.; Stockler, S.; Chakraborty, P.; Barbeau, P.; Garritty, C.M.; Pugliese, M. et al.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups

Journal of Inherited Metabolic Disease
2016 | Journal article
EID:

2-s2.0-84954370025

Contributors: Khangura, S.D.; Tingley, K.; Chakraborty, P.; Coyle, D.; Kronick, J.B.; Laberge, A.-M.; Little, J.; Miller, F.A.; Mitchell, J.J.; Prasad, C. et al.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Experiences of caregivers of children with inherited metabolic diseases: a qualitative study

Orphanet Journal of Rare Diseases
2016 | Journal article
EID:

2-s2.0-85002328239

Contributors: Siddiq, S.; Wilson, B.J.; Graham, I.D.; Lamoureux, M.; Khangura, S.D.; Tingley, K.; Tessier, L.; Chakraborty, P.; Coyle, D.; Dyack, S. et al.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Translating rare-disease therapies into improved care for patients and families: What are the right outcomes, designs, and engagement approaches in health-systems research?

Genetics in Medicine
2016 | Journal article
EID:

2-s2.0-84957705922

Contributors: Potter, B.K.; Khangura, S.D.; Tingley, K.; Chakraborty, P.; Little, J.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Reimbursement-Based Economics - What is It and How Can We Use It to Inform Drug Policy Reform?

Headache
2015 | Journal article
EID:

2-s2.0-84937390443

Contributors: Coyle, D.; Lee, K.M.; Mamdani, M.; Sabarre, K.-A.; Tingley, K.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease

BMC Pediatrics
2015 | Journal article
EID:

2-s2.0-84928162139

Contributors: Khangura, S.D.; Karaceper, M.D.; Trakadis, Y.; Mitchell, J.J.; Chakraborty, P.; Tingley, K.; Coyle, D.; Grosse, S.D.; Kronick, J.B.; Laberge, A.-M. et al.
Source: Self-asserted source
Kylie Tingley via Scopus - Elsevier

Peer review (1 review for 1 publication/grant)

Review activity for Orphanet journal of rare diseases. (1)