Personal information
Biography
I raise awareness, educate and advocate for people living with rare and invisible diseases, having a few myself.
I do that mostly as an expert patient and public speaker and through Ma vie de zèbre (My Zebra Life), a blog now turned website that I started in 2013 because I couldn't find much information in French (and none relevant to where I live) about Ehlers-Danlos syndromes, the only diagnosis I had at the time, and I wanted to change that.
I'm very active as a patient partner, being involved on various committees, and doing things like help change policies, create surveys, educate future healthcare professionals and much more.
I used to be a freelance translator (in French and English) and studied in arts and literature as well as in cultural and corporate event organization, worked many years in show business (on stage but also in production) and have a bachelor's degree in psychology.
My atypical life experience gives me a different vision that I love to share with people and hopefully inspire, reminding others that life's obstacles are not obstacles to happiness!
Activities
Education and qualifications (1)
Works (6)