Personal information

Verified email addresses

Verified email domains

United States

Activities

Employment (4)

National Bleeding Disorders Foundation: New York, New York, US

2017 to present | VP, Research Strategy (Research Department)
Employment
Source: Self-asserted source
Maria E Santaella

National Hemophilia Foundation: New York, New York, US

2017 to 2023 | VP, Research Strategy (Research Department)
Employment
Source: Self-asserted source
Maria E Santaella

University of Miami School of Medicine: Miami, FL, US

2002 to 2017 | Hemophilia Nurse Coordinator (Hemophilia Treatment Center)
Employment
Source: Self-asserted source
Maria E Santaella

Jackson Memorial Hospital: Miami, Florida, US

1995 to 2002 | RN (Pediatrics)
Employment
Source: Self-asserted source
Maria E Santaella

Education and qualifications (5)

American Nurses Credentialing Center: Silver Spring, Maryland, US

2016 to present | Board Certified Hemostasis Nurse (RN-BC)
Qualification
Source: Self-asserted source
Maria E Santaella

Oncology Nursing Certification Corporation: Pittsburgh, PA, US

2014 to present | Certified as Pediatric Hematology Oncology Nurse
Qualification
Source: Self-asserted source
Maria E Santaella

The Catholic University of America Conway School of Nursing: Washington, DC, US

2024 | PhD(c)
Education
Source: Self-asserted source
Maria E Santaella

University of Miami: Coral Gables, FL, US

2010 | MSN, Nursing Education
Education
Source: Self-asserted source
Maria E Santaella

Simmons College School of Nursing and Health Sciences: Boston, MA, US

1995 | BSN
Education
Source: Self-asserted source
Maria E Santaella

Works (15)

A pilot study of US HTC physical therapists' concordance of PT MASAC recommendations and educational needs

Haemophilia
2024-01 | Journal article | Author
Part of ISSN: 1351-8216
Part of ISSN: 1365-2516
Contributors: Lena Volland; Cindy Nichols; Maria E Santaella; Angela Lambing; Kate Nammacher; Neil Frick
Source: Self-asserted source
Maria E Santaella

Cross-cultural assessment of the influence of the COVID-19 pandemic on the perceived mental health and medical experiences of persons with inherited bleeding disorders and their parents/guardians

Expert Review of Hematology
2023-12-02 | Journal article | Author
Part of ISSN: 1747-4086
Part of ISSN: 1747-4094
Contributors: Sylvia von Mackensen; Maria E Santaella; Cynthia Nichols; Kate Khair; Angela Lambing; Michelle Witkop
Source: Self-asserted source
Maria E Santaella

Bridging the gap: Survey highlights challenges and solutions in outreach and identification of people with inherited bleeding disorders

Haemophilia
2023-09-17 | Journal article | Author
Part of ISSN: 1351-8216
Part of ISSN: 1365-2516
Contributors: Juliana Hagembe; Alain Baumann; Maria E Santaella; Thomas Sannié; Catherine Lambert; Anne Louise Cruickshank; Carlos Gaitan‐Fitch; Ekawat Suwantaroj; Cesar Garrido; Salome Mekhuzla
Source: Self-asserted source
Maria E Santaella

Lived experience experts: a name created by us for us

Expert Review of Hematology
2023-03-15 | Journal article | Author
Part of ISSN: 1747-4086
Part of ISSN: 1747-4094
Contributors: Esmeralda Vázquez; Michelle Kim; Maria E Santaella
Source: Self-asserted source
Maria E Santaella

The National Hemophilia Foundation State of the Science Research Summit initiative: Executive summary

Expert Review of Hematology
2023-03-15 | Journal article | Author
Part of ISSN: 1747-4086
Part of ISSN: 1747-4094
Contributors: Leonard A. Valentino; Michelle Witkop; Maria E Santaella; Donna DiMichele; michael recht
Source: Self-asserted source
Maria E Santaella

The National Hemophilia Foundation’s State of the Science Research Summit: The foundation of a national research blueprint for inherited bleeding disorders

Expert Review of Hematology
2023-03-15 | Journal article | Author
Part of ISSN: 1747-4086
Part of ISSN: 1747-4094
Contributors: Leonard A. Valentino; Michelle Witkop; Maria E Santaella; Donna DiMichele; michael recht
Source: Self-asserted source
Maria E Santaella

Building the blueprint: Formulating a community‐generated national plan for future research in inherited bleeding disorders

Haemophilia
2022-09 | Journal article | Author
Part of ISSN: 1351-8216
Part of ISSN: 1365-2516
Contributors: Leonard A. Valentino; Michelle Witkop; Maria E Santaella; Donna DiMichele; michael recht
Source: Self-asserted source
Maria E Santaella

Big picture initiatives in bleeding disorders

Haemophilia
2022-05 | Journal article
Part of ISSN: 1351-8216
Part of ISSN: 1365-2516
Contributors: Antoine Rauch; Leonard A. Valentino; Kevin Mills; Michelle L. Witkop; Maria E. Santaella; Donna DiMichele; Michael Recht; Sophie Susen
Source: Self-asserted source
Maria E Santaella

Physical therapy within US HTCs: A multicentre survey of utilization, practice patterns and pain management approaches

Haemophilia
2022-03 | Journal article | Author
Part of ISSN: 1351-8216
Part of ISSN: 1365-2516
Contributors: Jennifer Newman; Nancy Durben; Kimberly Baumann; Angela Y. Lambing; Cynthia D. Nichols; Michelle Witkop; Maria E Santaella; Tyler W. Buckner
Source: Self-asserted source
Maria E Santaella

Understanding the Pain Management Landscape Within the US Bleeding Disorder Community: A Multi-Center Survey

Pain Medicine
2022-02-01 | Journal article
Part of ISSN: 1526-2375
Part of ISSN: 1526-4637
Contributors: Michelle Witkop; Maria Santaella; Cynthia D Nichols; Angela Y Lambing; Kimberly Baumann; Randall G Curtis; Christi Humphrey; Thomas J Humphries; Jennifer Newman; Nancy Durben et al.
Source: Self-asserted source
Maria E Santaella

A descriptive study of United States bleeding disorders camps

The Journal of Haemophilia Practice
2021-01-01 | Journal article | Author
Part of ISSN: 2055-3390
Contributors: Maria E Santaella; Cynthia Nichols; Michelle Witkop
Source: Self-asserted source
Maria E Santaella

Patient advocacy and its importance to laboratory medicine practice: A response from patient advocacy groups

International Journal of Laboratory Hematology
2020-06 | Journal article
Part of ISSN: 1751-5521
Part of ISSN: 1751-553X
Contributors: Michelle Witkop; Maria Santaella; Caroline Kruse; Kay Holcombe
Source: Self-asserted source
Maria E Santaella
grade
Preferred source (of 2)‎

Home infusion teaching practices at federally funded hemophilia treatment centers in the United States of America

Research and Practice in Thrombosis and Haemostasis
2017-07 | Journal article
Part of ISSN: 2475-0379
Contributors: Maria E. Santaella; Maya Bloomberg; Debbie Anglade
Source: Self-asserted source
Maria E Santaella
grade
Preferred source (of 2)‎

Pain in the Bleeding Disorders Community: Patient and Caregiver Perspectives

Blood
2016-12-02 | Journal article
Part of ISSN: 0006-4971
Part of ISSN: 1528-0020
Contributors: Tyler W. Buckner; Nancy Durben; Christi Humphrey; Eric Iglewski; Jennifer Newman; Maria E Santaella; Michelle Witkop
Source: Self-asserted source
Maria E Santaella

Emerging Therapies for Hemophilia: A New Era of Care and the Role of the Interdisciplinary Team

Seminars in Thrombosis and Hemostasis
2014-08-21 | Journal article
Part of ISSN: 0094-6176
Part of ISSN: 1098-9064
Contributors: Susan Cutter; Joann Deutsche; Maria Santaella; Robin Chapman; Jennifer Lafranco; Angela Lambing; Michelle Witkop
Source: Self-asserted source
Maria E Santaella
grade
Preferred source (of 2)‎